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Ankle / After 3 surgeries, doctors don’t know what is still wrong with my ankle. Ideas?
« on: November 18, 2018, 06:05:12 PM »
Hi all, I was once very active on here and I know I haven’t been around much lately. I was hoping to heed all of your advice because I am feeling a bit hopeless.
I will try to keep this brief. I’m M/32, 5’9”, 160 lb, Tennessee, US. This is my original journal: http://osteochondraldefect.net/forum/index.php?topic=190.0
I sustained an OCD/osteochondral injury in 2011 from a severe sprain. My ankle never recovered and I had extreme pain with activity. PT failed so I had a microfracture surgery in 2012. My ankle was perfect for 6 months then the new cartilage wore away and I was worse off than before.
I had BMAC/bone marrow transplant (not very invasive) in 2014 which failed. Then later in 2014 I had DeNovo juvenile cadaver cartilage transplant, which seemed to work great.
Since then, since pretty much 6 months after surgery, the bone/cartilage felt good but I had what I always assumed was tendonitis - both on the peroneal tendon (primary pain) and posterior tibialis (secondary). MRIs have shown that the previous OCD looks good and they don’t show much in terms of tendonitis. Yet somehow I still have so much pain/aggravation.
I have seen a few different surgeons and a podiatrist. Multiple rounds of PT have only flared up my ankle. Wearing a boot felt great but the pain resumed after taking off the boot. At the recommendation of pds, I recently got custom orthotics which seemed to work great for a bit but I have relapsed.
My ankle now just feels super aggravated and pissed off a lot of the time. It feels like an extreme pinching (almost a stabbing) pain in the area of my peroneal tendon. I also feel pain around my posterior tib area, but the pain also seems to travel all around my ankle - it is hard to localize. It happens with impact while walking but also if I just rotate my foot around while resting. Even with the orthotics my gait still feels off, my leg/ankle/foot feels weak, and the foot feels loose in the joint.
My foot just slipped off the step and I slammed my foot flat onto the ground, and I felt a shockwave or pain throughout the outside of my ankle (I’m guessing in the peroneal) and subsequently all around the ankle. It was just horrible.
Does anyone have any ideas? Is it still just as simple as tendonitis? At this point how could I treat it? After 3.5 years it feels chronic and severe. Thank you all in advance.
I will try to keep this brief. I’m M/32, 5’9”, 160 lb, Tennessee, US. This is my original journal: http://osteochondraldefect.net/forum/index.php?topic=190.0
I sustained an OCD/osteochondral injury in 2011 from a severe sprain. My ankle never recovered and I had extreme pain with activity. PT failed so I had a microfracture surgery in 2012. My ankle was perfect for 6 months then the new cartilage wore away and I was worse off than before.
I had BMAC/bone marrow transplant (not very invasive) in 2014 which failed. Then later in 2014 I had DeNovo juvenile cadaver cartilage transplant, which seemed to work great.
Since then, since pretty much 6 months after surgery, the bone/cartilage felt good but I had what I always assumed was tendonitis - both on the peroneal tendon (primary pain) and posterior tibialis (secondary). MRIs have shown that the previous OCD looks good and they don’t show much in terms of tendonitis. Yet somehow I still have so much pain/aggravation.
I have seen a few different surgeons and a podiatrist. Multiple rounds of PT have only flared up my ankle. Wearing a boot felt great but the pain resumed after taking off the boot. At the recommendation of pds, I recently got custom orthotics which seemed to work great for a bit but I have relapsed.
My ankle now just feels super aggravated and pissed off a lot of the time. It feels like an extreme pinching (almost a stabbing) pain in the area of my peroneal tendon. I also feel pain around my posterior tib area, but the pain also seems to travel all around my ankle - it is hard to localize. It happens with impact while walking but also if I just rotate my foot around while resting. Even with the orthotics my gait still feels off, my leg/ankle/foot feels weak, and the foot feels loose in the joint.
My foot just slipped off the step and I slammed my foot flat onto the ground, and I felt a shockwave or pain throughout the outside of my ankle (I’m guessing in the peroneal) and subsequently all around the ankle. It was just horrible.
Does anyone have any ideas? Is it still just as simple as tendonitis? At this point how could I treat it? After 3.5 years it feels chronic and severe. Thank you all in advance.