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Topics - Namelike

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Hi all, I was once very active on here and I know I haven’t been around much lately. I was hoping to heed all of your advice because I am feeling a bit hopeless.

I will try to keep this brief. I’m M/32, 5’9”, 160 lb, Tennessee, US. This is my original journal: http://osteochondraldefect.net/forum/index.php?topic=190.0

I sustained an OCD/osteochondral injury in 2011 from a severe sprain. My ankle never recovered and I had extreme pain with activity. PT failed so I had a microfracture surgery in 2012. My ankle was perfect for 6 months then the new cartilage wore away and I was worse off than before.

I had BMAC/bone marrow transplant (not very invasive) in 2014 which failed. Then later in 2014 I had DeNovo juvenile cadaver cartilage transplant, which seemed to work great.

Since then, since pretty much 6 months after surgery, the bone/cartilage felt good but I had what I always assumed was tendonitis - both on the peroneal tendon (primary pain) and posterior tibialis (secondary). MRIs have shown that the previous OCD looks good and they don’t show much in terms of tendonitis. Yet somehow I still have so much pain/aggravation.

I have seen a few different surgeons and a podiatrist. Multiple rounds of PT have only flared up my ankle. Wearing a boot felt great but the pain resumed after taking off the boot. At the recommendation of pds, I recently got custom orthotics which seemed to work great for a bit but I have relapsed.

My ankle now just feels super aggravated and pissed off a lot of the time. It feels like an extreme pinching (almost a stabbing) pain in the area of my peroneal tendon. I also feel pain around my posterior tib area, but the pain also seems to travel all around my ankle - it is hard to localize. It happens with impact while walking but also if I just rotate my foot around while resting. Even with the orthotics my gait still feels off, my leg/ankle/foot feels weak, and the foot feels loose in the joint.

My foot just slipped off the step and I slammed my foot flat onto the ground, and I felt a shockwave or pain throughout the outside of my ankle (I’m guessing in  the peroneal) and subsequently all around the ankle. It was just horrible.

Does anyone have any ideas? Is it still just as simple as tendonitis? At this point how could I treat it? After 3.5 years it feels chronic and severe. Thank you all in advance.

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Ankle / Tendonitis after OCD surgery
« on: March 03, 2017, 09:01:10 AM »
Hi all,

Has anyone else experienced tendonitis after OCD surgery (or particularly DeNovo)?

I am a little over 2 years out from DeNovo surgery 12/2014, which was my third surgery in 2 years. The talus itself feels great and I don't have the leg buckling pain that I used to. However, for pretty much a year and a half now, I have been experiencing (I think) tendon pain, stiffness, and weird vibrating/humming/tingling sensations. It is worse after being at rest for a while but when I am up and moving all day it tends to feel better.

My doctors have told me that it is due to weakness and if I get stronger the pain will resolve. However my PT is kind of limited by the pain. When I go up on my toes I feel a little crunching around my Achilles and I also feel a sharp shooting pain on what I think is my peroneal tendon down to under my foot. I also feel a little pain on the inside of my ankle, medial to my achilles. It started to feel better for a little bit but recently, I don't know whether it is a flare up or what, but it feels like it has gotten worse. I got an MRI a few months ago and they said the OCD looks great and is still completely filled in so I really don't think the surgery itself failed.

Is this in fact tendonitis? Could it possibly be a year that didn't show up on MRI? If so, what else could they do to diagnose?

Has anyone else experienced this? Is it resolvable?

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Thought all of you East Coasters would appreciate this: http://youtu.be/a3aG6lb6Vcc

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Hello everybody,

I have been reading this forum for a while now and wasn't planning on doing a write-up of my personal experiences. However so many of your posts have been hugely informative and inspirational to me, so I am writing this in hopes that my story will also help someone, somewhere, at some point. I'm a 28 year old male, once very active (weightlifting, running, boxing, swimming, softball, etc.), and this OCD has pretty much brought my active lifestyle to a halt. It has also created a tremendous strain in my life both emotionally and with work, as many of you have also probably experienced.

Here's the background. Recovery updates will come in subsequent replies.

The short story:

My OCD went undiagnosed for almost 2 years, I had a MF which was successful for a few months and then the pain returned, I tried conservative treatment which failed, I tried just a bone marrow graft, and then most recently (this week) I had DeNovo NT implanted. So 3 surgeries and 3 rounds of PT in 4 years.

The long story:

I rolled my ankle REALLY bad in November 2010. It never quite got better, so I went to my family doctor to get an X-ray. He sent me straight to PT without imaging, I wasted $1500 on that, and then finally in 2012 I got an MRI which revealed an OCD on my talar dome. I'm really wishing I knew to see an orthopedic surgeon earlier, but I guess hindsight is 20/20.

In September 2012 I got a microfracture and left lateral ligament reconstruction. Horrible recovery as many of you know. 2 months on crutches (in a hard cast), and then another 6 weeks in a boot. After PT, I felt great. By March 2013 I was 100%.. running, playing basketball, softball, and boxing again.

This lasted for about 3 months, and then the pain came back. Not the same pain, more around my Achilles, and I assumed it was tendinitis. We tried conservative treatment - 4 cortisone shots, a bone growth stimulator to use during sleeping (at the recommendation of OS #2), and good insoles - but none of it worked for more than a few weeks.

In December 2013 I went back to OS #1. After getting another MRI (here: http://imgur.com/a/fZZg5), he recommended the OATS procedure from my knee, and said there are no other options. I actually scheduled OATS for August 2014, but something didn't feel right about it, especially because he wasn't making much of an effort to diagnose the pain near my Achilles (which was causing about 75% of my pain). I decide to research other options... luckily I found this website and learned about DeNovo NT.

As many others have, I drove a few hours to visit Dr. Schon back in August. He said I was a great candidate for DeNovo, but because of the pain I was having (definitely still present from the OCD, but also in my tendons) and also me wanting to avoid taking off 2 months from work, he recommended first trying a bone marrow graft (which is a quick recovery) before going with DeNovo.

I got the bone marrow graft in September, with no relief. As a result, this past Monday 12/22 he implanted 2 packets of DeNovo, cleaned out scar tissue, and he also released two tendons. I'm non-weight bearing for 6-8 weeks then will have a boot for another 6 after that. I'm going to be super conservative with my recovery.. this is my third surgery and I really hope it will be my last!

Dr. Schon has been incredible and I recommend him to anyone with an OCD, even if he's a drive or flight away. He always spends as much time as I need, makes it a point to review images with you and explain his findings, and is known as one of the top DeNovo implanters. Both him and his office are really top notch.

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Hello everyone. I (27/M) had a microfracture surgery in September 2012. I felt great for a whole but unfortunately the cartilage degenerated and I have severe pain again. My OS recommended the OATS knee to ankle surgery, and didn't think DeNovo was a good option. After researching more online I'd like to consider DeNovo. Does anyone have any recommendations for physicians in philadelphia or in the Northeast? Thank you!

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